I got an email today from a girl named Ashley that touched me more than I thought possible. I'm not going to print that email here, but it will be saved in my personal section that I don't publish. With your email Ashley, you have confirmed to me that my diary has indeed helped someone and I thank you for that. Plus, she thinks that I have really cute babies so that's another reason why I like getting emails from her so much. Ashley, if you're reading this, I'm always here if you want to chat, and I'm glad that you're finally becoming as happy as you deserve to be.
As far as any medical updates go, my rash has changed and moved to my back and legs in the form of pins and needles when I sweat. It's like getting hit with hundreds and hundreds of little arrows from a marauding Lilliputian army. Go borrow Gulliver's Travels from the library if you missed that last joke. Seriously though, it hurts like a M.F. if I let the sweat stay on my skin for more than five minutes, and has actually made me cry out in pain at times. My remedy for the sweat problem is to super-exfoliate with my Oil of Olay bodywash and puff.
Ok, done laughing? Yes, I am a puff user. I don't think it makes me any less manly. In fact, I think that forcibly scraping layers of skin of my body twice a day sounds more manly than simply using soap. The only unfortunate thing about the puff is that it does not come in manly colours. I think mine is a mauvy-purple which is about as non-manly as I'll go in the palette of possible puff colours. I'm still looking for a camouflage patterned puff, but until that day comes, I shall use mauve and be happy about it. It's all about the skin scraping power of the puff anyway, and my mauvey-purpley puff is still pretty rough on the skin. We've got a pumice stone brush as well, but that's a place I'm just not prepared to go to at this stage of my life.
Let's move away from the discussion of beauty products and talk about something more dear to my heart. What's with all the mucus? I'm serious here, are there other bone marrow transplant survivors that have uncontrollable post-nasal drip? I've been told not to worry about it unless it increases or changes colour, but I'm almost considering skipping lunch permanently due to the sheer quantity of snot that I snort back every day. I'm not sure what the nutritional elements of snot are, but I'm most likely getting 100% of my daily recommended intake. It's obviously not helping with my energy levels since all I want to do is sleep these days. I don't think it's a cold since I've had it for too long, so it's most likely GVH. The only thing to do now is to hope that it goes away with time or buy shares in Kleenex.
I promised Caity I'd make this one short, since I disrupt her sleep when I come to bed late. Tomorrow morning I'm off to get my monthly IV of immuno-globulin which means I've got to go in early and be pre-medicated with Benidril (sp?) to avoid the total body rash I get when I receive blood products. This is also the first time I've needed anything IV since my line came out, so that means that they've got to go and poke around for a vein in my arm. I've got big "easy to hit" veins, but what I wouldn't give to have my central line magically re-inserted just for tomorrow. Oh well, if I can withstand the manly pain of exfoliation I can deal with a little needle, right? Anyway, off I go stealthily to bed. I'll most likely step on a cat or two on the way up the stairs, and run into the crib in the bedroom on the way to bed like every night, but that's the life I live.
P.S. I love my puff, so don't give me any sh*t about it alright? :-)
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